Hey all!👋🏼
As many of you know, my daughter Esmè has very complex needs requiring 24hr care;
PARS2 genetic variant associated with;
Registered Blind
Nystagmus
Scoliosis
Central motor disorder with dystonia and spasticity
Hip dislocation
Tube-fed
Epilepsy
Microcephaly
Quadriplegia
April 2023 I received the heartbreaking news about her limited life expectancy of less than 10 years. Bluebell Wood Children’s Hospice became a place of comfort, care, and understanding for both of us.
Esmè has been attending Bluebell for over a year now, and they’ve done so much not only for her, but for me too. Their kindness and support during the hardest moments of our journey has been incredible. I’ll be forever grateful for the love and reassurance they’ve given us, especially being a young single mum doing it completely alone💛
To give something back to Bluebell wood and my way of saying thankyou I have decided to take part in this extraordinary event😅 Crazy? Maybe just a little🤏🏼🦈
My goal is to raise £750 for Bluebell Wood, to help them continue supporting children and families like ours🧑🧒
If you can donate, no matter how big or small, it would mean the world to me. And if you can’t donate, please share this post to help spread the word😌 The button that says share next to donate will not work👎 so to share it out you can press the 3 small dots at the top of the page and select copy link.
Thankyou truly💜
Hey all!👋🏼
As many of you know, my daughter Esmè has very complex needs requiring 24hr care;
PARS2 genetic variant associated with;
Registered Blind
Nystagmus
Scoliosis
Central motor disorder with dystonia and spasticity
Hip dislocation
Tube-fed
Epilepsy
Microcephaly
Quadriplegia
April 2023 I received the heartbreaking news about her limited life expectancy of less than 10 years. Bluebell Wood Children’s Hospice became a place of comfort, care, and understanding for both of us.
Esmè has been attending Bluebell for over a year now, and they’ve done so much not only for her, but for me too. Their kindness and support during the hardest moments of our journey has been incredible. I’ll be forever grateful for the love and reassurance they’ve given us, especially being a young single mum doing it completely alone💛
To give something back to Bluebell wood and my way of saying thankyou I have decided to take part in this extraordinary event😅 Crazy? Maybe just a little🤏🏼🦈
My goal is to raise £750 for Bluebell Wood, to help them continue supporting children and families like ours🧑🧒
If you can donate, no matter how big or small, it would mean the world to me. And if you can’t donate, please share this post to help spread the word😌 The button that says share next to donate will not work👎 so to share it out you can press the 3 small dots at the top of the page and select copy link.
Thankyou truly💜