Over the past few months Bluebell Wood has supported me and my family in ways that are hard to write down, for those who have heard my story before unfortunately this chapter is a very sad one, Olivia lost her battle with Battens Disease on April 3rd (Good Friday) 2026, she had been hospitalised several times over the last 12 months with aspirational pneumonia, a complication often experienced by Battens Children. Once it became apparent that this latest battle was one Olivia was likely to lose Bluebell Wood offered support like I’d never imagined possible, we were quickly transferred from the hospital to the Hospice to be cared for by the team of nurses up there and as a whole family we spent the next 5 days worrying about nothing other than surrounding Olivia with the love of family and friends, we had visitors at all hours. When I said we worried for nothing I mean literally that, we were fed, watered and were provided with all the time and space we needed to ensure Olivia was surrounded by all her family and close friends, the staff at the Hospice became like family, a shoulder to cry on, a distraction keeping us entertained. After Olivia had passed away, we were still fully supported by the team at Bluebell, we moved into the Family Lounge (Forget-me-not Suite) where we were able to spend the next 6 days as a family supported by the team and friends while remaining close to Olivia, our whole family(including our 2 dogs) stayed up at Bluebell without a care in the world other than to grieve for Olivia and to support each other through this devastating time.
Well done everyone!
Well done team Inzpire.
Amazing effort as always!!!
Fantastic stuff!
??
Charlotte Green (illustrious)
Good luck Russ and the team x love the Dixons
Good.luck.
Good luck with it bud
I’m so sorry for your loss
Miss you Liv! Fly high - top family xx
Good luck Courtney and team xx
Good luck all! You’ll smash it. All for a brilliant cause.
Good luck sure you will smash it x
What a lovely thing to do in Olivia’s memory. So sorry for your loss. Go smash it x
No doubt you will smash this Russ good luck ??
Looking forward to finally coming first!
Good luck Russ
Good Luck!
Good luck to Russ and team ??
Good luck guys, fantastic cause, love you guys ??
Good Luck with the Dragon Boat Race - Mick & Sarah-Jane Nadin
??
Inzpire - Good luck from everyone at Inzpire!
Great cause and good luck with the challenge.
Great charity. My thoughts are with the family. Good luck guys!
Paul Billington
Good Luck Russ and Ben
Move that Dragon boat faster than the others, keep this charity going.
Gutted that I can’t attend this year, but an amazing bunch of people doing something special for the amazing Bluebell Wood.
Great Cause!
Bring that GOLD medal home ??
Really great cause...and...good luck with the race!
Lets try to go one better this year and win!!!!
Good Luck!
Good Luck Russ - I hope you finally take the gold this year!
Good luck guys! What an incredible cause.
Good Luck!
Best of luck in the race!
Good luck to you all; hopefully 1st place this year.
All the best Russ.....Ster
Good luck - make a splash!
Well done everyone!
Well done team Inzpire.
Amazing effort as always!!!
Fantastic stuff!
??
Charlotte Green (illustrious)
Good luck Russ and the team x love the Dixons
Good.luck.
Good luck with it bud
I’m so sorry for your loss
Miss you Liv! Fly high - top family xx
Good luck Courtney and team xx
Good luck all! You’ll smash it. All for a brilliant cause.
Good luck sure you will smash it x
What a lovely thing to do in Olivia’s memory. So sorry for your loss. Go smash it x
No doubt you will smash this Russ good luck ??
Looking forward to finally coming first!
Good luck Russ
Good Luck!
Good luck to Russ and team ??
Good luck guys, fantastic cause, love you guys ??
Good Luck with the Dragon Boat Race - Mick & Sarah-Jane Nadin
??
Inzpire - Good luck from everyone at Inzpire!
Great cause and good luck with the challenge.
Great charity. My thoughts are with the family. Good luck guys!
Paul Billington
Good Luck Russ and Ben
Move that Dragon boat faster than the others, keep this charity going.
Gutted that I can’t attend this year, but an amazing bunch of people doing something special for the amazing Bluebell Wood.
Great Cause!
Bring that GOLD medal home ??
Really great cause...and...good luck with the race!
Lets try to go one better this year and win!!!!
Good Luck!
Good Luck Russ - I hope you finally take the gold this year!
Good luck guys! What an incredible cause.
Good Luck!
Best of luck in the race!
Good luck to you all; hopefully 1st place this year.
All the best Russ.....Ster
Good luck - make a splash!
Over the past few months Bluebell Wood has supported me and my family in ways that are hard to write down, for those who have heard my story before unfortunately this chapter is a very sad one, Olivia lost her battle with Battens Disease on April 3rd (Good Friday) 2026, she had been hospitalised several times over the last 12 months with aspirational pneumonia, a complication often experienced by Battens Children. Once it became apparent that this latest battle was one Olivia was likely to lose Bluebell Wood offered support like I’d never imagined possible, we were quickly transferred from the hospital to the Hospice to be cared for by the team of nurses up there and as a whole family we spent the next 5 days worrying about nothing other than surrounding Olivia with the love of family and friends, we had visitors at all hours. When I said we worried for nothing I mean literally that, we were fed, watered and were provided with all the time and space we needed to ensure Olivia was surrounded by all her family and close friends, the staff at the Hospice became like family, a shoulder to cry on, a distraction keeping us entertained. After Olivia had passed away, we were still fully supported by the team at Bluebell, we moved into the Family Lounge (Forget-me-not Suite) where we were able to spend the next 6 days as a family supported by the team and friends while remaining close to Olivia, our whole family(including our 2 dogs) stayed up at Bluebell without a care in the world other than to grieve for Olivia and to support each other through this devastating time.